I am 51 years old and was seen over a year ago in the community for a hearing test after noticing I could not hear in my left ear. To my shock I came out with hearing aids and a referral to ENT due to huge differences in ears.
Had my appointment just after Christmas and consultant advised MRI.
During MRI they pulled me out and stated they needed to do contrast, I knew then something was up. Recalled within two days for results. Consultant doing a referral to be seen as soon as possible. It’s been a rollercoaster of emotions despite reading up about acoustic neuroma.
I was told on 20/01/26 so still digesting. In a way I feel relieved as it explains quite a few symptoms. I would be grateful for any guidance or shared experiences.
Hi Janiec3a2fe and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
I’m Anne, one of the Community Champions here on the Online Community, and I'm going to recommend that you join the brain cancer group as you'll then connect directly with others who have been diagnosed with an acoustic neuroma.
To join, just click on the link I've created and, once you've joined, you can start a new post in the same way as you did here and join in with existing conversations by clicking on 'reply'.
It would be great if you could put something about your diagnosis and any proposed treatment into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
"Never regret a day in your life, good days give you happiness, bad days give you experience"
