NET tumour

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I have been told today I have a 38mm NET tumour which has spread to surrounding lymph nodes and to four places in liver. This was an incidental finding and I’m so shocked as I don’t have any symptoms and feel fine.  I’m being transferred from the hospital that diagnosed me to another hospital for treatment. All I can think about is my 6 year old rescue dog. It has taken me 2 years to make him feel safe and settled and the thought that he may lose me is unbearable. I lost my partner to a sudden death recently and with no other family or friends how will I cope. My partner always drove so now I have to contend with driving over an hour each way to hospital and leaving my dog for hours on end. 

  • Hi  and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.

    I’m Anne, one of the Community Champions here on the Online Community, and although I've had different cancer diagnoses to you I know how shocked you're probably feeling right now.

    The online community is divided into different support groups so I'm going to recommend that you join the neuroendocrine tumour (NET) group as you'll then connect directly with others who have the same type of cancer as you. You might also like to join the animals are family too group.

    To join these groups, just click on the links I've created and, once you've joined, you can start a new post in the same way as you did here and join in with existing conversations by clicking on 'reply'.

    It would be great if you could put something about your diagnosis and proposed treatment into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

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     "Never regret a day in your life, good days give you happiness, bad days give you experience"