Hi Everyone, im new to this community. My husband has stage 4 melanoma. I'm watching him deteriorate by the day now. He had a seizure this morning so have been at hospital all day, they are keeping him in. Lots of tests, brain scan etc.
Im finding this so hard to cope with, love him dearly and hes never complained once. Cant sleep tonight, feeling very isolated, exhausted and alone. Looking for support from carers in a similar situation who understand.
Hi Elsa and a warm welcome to the Macmillan Community but so sorry to hear about your husband.
A cancer diagnosis in the family like this can be such a challenging and stressful time but getting support from others who are dealing with the ‘exact same' support challenges can help you a lot.
The Community is actually divided into dedicated Support Groups (Discussion Rooms) and when it comes to the practical and emotional challenges of supporting your husband and indeed yourself you may benefit from joining and posting in our……
Supporting someone with incurable cancer (If this is applicable)
……. support groups where you will connect with a wide range of members navigating the exact same support challenges.
To connect with a group click on the “Bold Links” I have created above …… then once the group page opens click in the [Black - Click to Join - Banner] that appears at the bottom of the page and this will then confirm that you have joined the group.
When you are ready……. you can introduce yourself by putting up your very own post by clicking [+ Create new post] or [+] in the top right of the group page.
You can copy and paste the text from this post into your new post.
It is an emotional time supporting family so you might find this Macmillan information your feelings when someone has cancer helpful as well as this link getting help with your emotions.
The Macmillan Support Line is open between 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00…… this service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.
Talking to people ‘face to face’ can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing.
Do get back to me if you need further help navigating the community ((hugs))
Sorry to hear this….. I will always say that the journey is as hard for those looking on than for the person in the bed…… I landed in critical care a few times and you are basically a passenger not knowing what is going on…… so can’t start to imagine what my wife went through.
Do connect in with the groups I have highlighted as you can chat with family members who totally understand ((hugs))
