This is my first post, I found a lump in my neck on 1st October and have had biopsies and CT, MRI scans most recently a PET scan. I've tried to be positive but as my appointment/ diagnosis approaches I'm finding it hard to not fear that it is now too late to treat successfully. I feel inside me that it is. I have lots of symptoms they say are probably anxiety but I don't think it is. The lumps have multiplied and I am now on the list for surgery on my throat - things are moving quicker now but this just makes me feel more like after all this time it might be too late. My husband died four years ago just 52. I am finding it very hard not to fear the worst (for me and my children). I want to find out but am just terrified that it is now too advanced.
Hi Pop
Welcome to our community, I hope you find it both informative and supportive.
Many on here have said about the time between the first appointment and actually getting a confirmed diagnosis as about the most difficult of all and we can read about that here.
Have you got anyone to go with you to your appointment? It can often be helpful to have someone take notes as it can be quite overwhelming.
<<hugs>>
Steve
Hi Pop
Have you been diagnosed with oropharyngeal squamous cell carcinoma? If you have head over to the Head and Neck Cancer Forum. Just click on the link.
I can tell you that even advanced HNC is very curable. I am fast approaching seven years clear.
Come and join us. We are a pretty friendly bunch and there is always somebody around to talk to
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Hi thank you for saying this, that gives me som hope, I'm still waiting for a definitive diagnosis. The last biopsy found squamous cells in the lymphoma so I will find out tomorrow hopefully what they could see on the PET scan and I have had a pre procedure appointment for surgery. So I hope some treatment will start soon and I will follow your blog. Thanks so much. I am so glad you are doing well.
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2026 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007