Waiting for results

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This is my first post, I found a lump in my neck on 1st October and have had biopsies and CT, MRI scans most recently a PET scan. I've tried to be positive but as my appointment/ diagnosis approaches I'm finding it hard to not fear that it is now too late to treat successfully. I feel inside me that it is. I have lots of symptoms they say are probably anxiety but I don't think it is. The lumps have multiplied and I am now on the list for surgery on my throat - things are moving quicker now but this just makes me feel more like after all this time it  might be too late. My husband died four years ago just 52. I am finding it very hard not to fear the worst (for me and my children). I want to find out but am just terrified that it is now too advanced. 

  • Hi  

    Welcome to our community, I hope you find it both informative and supportive.

    Many on here have said about the time between the first appointment and actually getting a confirmed diagnosis as about the most difficult of all and we can read about that here.

    Have you got anyone to go with you to your appointment? It can often be helpful to have someone take notes as it can be quite overwhelming.

    <<hugs>>

    Steve

    Community Champion Badge

  • Thank you, I will follow the link. It's a fine line between ignorance is bliss and wanting a clearer idea of what to expect. the closer I get the worries are starting back up. Not too much longer I hope. 

  • Hi  

    Have you been diagnosed with oropharyngeal squamous cell carcinoma? If you have head over to the Head and Neck Cancer Forum. Just click on the link.

    I can tell you that even advanced HNC is very curable. I am fast approaching seven years clear. 

    Come and join us. We are a pretty friendly bunch and there is always somebody around to talk to

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Hi thank you for saying this, that gives me som hope, I'm still waiting for a definitive diagnosis.  The last biopsy found squamous cells in the lymphoma so I will find out tomorrow hopefully what they could see on the PET scan and I have had a pre procedure appointment for surgery. So I hope some treatment will start soon and I will follow your blog. Thanks so much. I am so glad you are doing well.