I am sharing this story as an inspiration and to give hope for the hopeless. I got married on July 8, 2017. In February 2018, I came home to find him having a stroke. It turned out his brain was bleeding, and he needed immediate brain surgery to reduce swelling and remove a large blood clot. The neurosurgeon told us he had an inoperable AVM (Arteriovenous Malformation) and would likely need radiation down the line. Because his right side and speech were impacted, he started physical, occupational, and speech therapy. Fast forward 5 months, he was getting excruciating headaches, and one day were worse than others; he was rushed to a different nearby hospital and was bleeding again. They performed a second craniotomy, and this time the neurosurgeons found a tumor that turned out to be a grade 3 Glioma, and not an AVM as we had thought. They were able to remove about 90% of the tumor, and he will begin treatment in about a month. He is 27 and looking for survival stories as he would like to live a long life and have children.
Hello Jessi and a warm welcome to the online communities, although I'm very sorry you've found the need to join.
I'm afraid I have no direct experience of a glioma but would suggest you repost in the brain forum where I'm sure you will receive positive responses from the members there.
I've inserted the link to this below.
Derek.
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
