"Hi everyone,
My name is Daniel, and I’m a local lad from Coventry. I’ve decided to join this community because after nearly 30 years of navigating the medical world, I’ve realized that no one should have to walk this path alone.
I’m reaching out to see if there are any other 'long-term fighters' here. My history has been a bit of a rollercoaster:
1997: My first battle with Leukaemia. I was young and managed to beat it.
2008 – 2012: A very rough four years where I survived three major esophageal varices bleedouts. Each one led to ICU stays and near-death experiences.
2022: I was hit with Kidney Cancer.
I’m here to find connection and maybe some advice from others who have dealt with multiple primaries or long-term recovery. It’s a lot to process, and I’m looking to rebuild my strength and my outlook with people who truly 'get it.'
Looking forward to hearing your stories and sharing some strength.
Onwards and upwards,
Daniel
Hello Daniel,
I'm sorry to hear how much you have been through. I can't advise regarding multiple primaries as this has not been my experience. I have stage 4 RCC and also a pituitary tumour although this is considered to be benign. I am on immunotherapy which is reducing the tumour on my kidney. It was 13cm and inoperable.
I am awaiting an update regarding the pituitary tumour following a petct at Coventry university hospital. They will perform surgery when needed. It currently is not causing any issues.
I am sure there will be people here who can advise better than I can concerning your situation.
Thinking of you and wishing you all the best.
Vicki
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