Prostate Cancer

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I was diagnosed with prostate cancer in 2021. I had the usual tests/scans and a biopsy and then a prostatectomy on Aug 4th 2021. Two weeks later I had the catheter removed and two days later was rushes back into hospital with a major infection. They scanned my bladder and found it was a 3rd bigger than it should have been and I was very close to having sepsis. Luckily they filled me with antibiotics etc and I was discharged from hospital 3 days later. Recovery was slow but I got there eventually BUT, six weeks later a CAT scan revealed the cancer had gone to a Lymph node in my groin and was inoperable due to it's location so I have to have Prostrap jabs every 12 weeks for the rest of my life. The side effects are irritating but the alternative is much worse so I put up with it. 

I could not do pelvic floor exercises for at least 6 to 8 weeks because it was too painful but I did get there eventually and persevered with them for 18 months. My leakage did improve to the point of where it is now and this is my question. Even though I still do pelvic floor exercises my leakage varies according to my activity. I use level 1 Tena pads and can use 2 a day at it's worst but it's mostly one. I was told by Andrology that this is quite normal. Is anyone else in this same situation, I would be interested to know please...... 

  • Hello  

    A warm welcome to the Macmillan Online community, although I am so sorry to find you joining us. I am Brian one of the Community Champions here on the online Community and like you I am in the 4th year of my personal Prostate Cancer journey. (You can read this by clicking on my name or avatar).

    The Community is divided into cancer specific groups so I would advise you to come and join us on the Prostate group and here's the link you need:

    Prostate cancer forum 

    Once you click on the link and the page opens up click on the black banner at the bottom of the page to join the group. Once you have joined us you can either copy and paste or repost your original post above in the "New Here - Say Hello" section. I can assure you of plenty of replies.

    I look forward to "meeting" you again in our part of the Community.

    Best wishes - Brian.

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