Newly diagnosed and filled with dread

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I am 65, always had regular smear tests, the last one being 2022. All normal. On 12th October I had a bleed it was a Sunday and waiting to see the gp the following day seemed like forever. I was examined and referred . Within the week I had an internal and external ultrasound, results showing a 4cm "fibroid" ovaries ok, lining of uterus 1.2mm. I then went for hysteroscopy myosure (i think its called). During the hysteroscopy I was told the mass was a butter consistency and breaking up, she wouldn't push through incase ruptured uterus. She asked if I had regular smears. At that point I knew something was wrong. Took biopsys and then the dreaded wait. A week later  had a phonecall telling me the results showed cancer, i felt sick, it is a "moderately differentiated squamous cell carcinoma". I think I went into shock , my body shook and I felt cold. After I couldn't eat, I had waves of dread and fear. I had a PET CT scan and an MRI scan, I am awaiting the results. My gp phoned to see where I was up to, she listened which was good. I am usually a positive person, but I am having such a wave of emotions, I havnt cried, just comforted my loved ones. Its the fear of the unknown. The negative feelings. I have spoken to a friend who was diagnosed the beginning of the year, she told me about her treatment, chemo. Radiotherapy and brachytherapy . She talked about how she felt, which helped because the emotions sounded similar so I didn't feel so alone. Sorry for the long post. Thanks for being there xx

  • Hello ... I am so sorry you are going through this. 

    I had a similar experience and was diagnosed with stage 3c cervical cancer almost 3 years ago, your post made me remember how I felt. I had so many questions about the unknown and unimagined pathway infront of me. I have never posted before, so few people talk openly about cervical cancer and they should do.

    I had just short of a years treatement of Chemo, Radiotherapy and Brachytherapy, it worked and I am still here, working full time and enjoying every day with my amazing children. 3 years ago in my worst moments I was prepared for my last Christmas with them. 

    All I can say is take each day as it comes, ask your doctor lots of questions, I had a  mantra of "fact over fear" although I never wanted statistics, I was an individual who wanted to be cured not a number Slight smile

    The idea of the treatement scared me as much as the cancer but once I started treatement it helped with the  lost and confused feelings. 

    The Chemo was OK, a freind said one day in passing that its the ultimate self care ... she was right, I treated it like a very special spa day once a week.  I always took a special soft blanket for a nap, headphones, nice snacks and a good book. The nurses were amazing. 

    Radio was very practical, everyday, tiring but was ultimatley the cure. 

    Brachy was the final hurdle and was worth it for the " no evidence of desease " doctors report from my latest PET scan. 

    The pathway in front of you is not easy, but its not as scary as it feels right now. 

    Keep you loved ones close, take each day as it comes, use those very special people in your life to talk about what scares you. 

    Use the support offered, I had talk therapy, it helped.

    Most of all, keep going. There are lots of us out here .... keep talking xx

  • Thank you so much for your reply. Its good you are all clear x I have been talking to family and friends, but its good having online support of others who have been through the same thing. Im trying to take it day by day x Thanks again xxx

  • Hi  and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.

    I’m Anne, one of the Community Champions here on the Online Community, and although I haven't had the tests and examinations that you have, I know how worrying being told you have cancer is.

    The online community is divided into different support groups and, as I'm not sure from your post if it's womb cancer or cervical cancer you've been diagnosed with, I've added links to both groups.

    To join, just click on the right link for your type of cancer and, once you've joined, you can start a new post in the same way as you did here and join in with existing conversations by clicking on 'reply'.

    It would be great if you could put something about your diagnosis and proposed treatment into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

    Wishing you all the best with your treatment

    Community Champion Badge

     "Never regret a day in your life, good days give you happiness, bad days give you experience"

  • Hi  and a very warm welcome to you too.

    I’m sorry to read that you were diagnosed with cervical cancer a few years ago but thank you for taking the time to share your experiences with Beekeeper527494c.

    The online community is divided into different support groups so you might like to join the cervical cancer group as you'll then connect directly with others who have this type of cancer.

    To join just click on the link and, once you've joined, you can start a new post in the same way as you did here and join in with existing conversations by clicking on 'reply'.

    Anne

    Community Champion Badge

     "Never regret a day in your life, good days give you happiness, bad days give you experience"

  • Thanks. Ive joined the cervical cancer group x