Hello everyone,
This is my first post here. I will be starting chemo (CAPOX) this Tuesday and wanted to know if anyone has come across diary templates for monitoring their chemo treatment? Are patients given diaries to keep a track of symptoms and issues?
Hi Alomgir15ac27 and a very warm welcome to the Macmillan Community but sorry to hear about your diagnosis.
I know from experience having been on my cancer journey for over 25 years with two very rare, hard to treat types of Non Hodgkin’s Lymphomas (one incurable) that navigating this journey can be such a stressful and challenging time but talking with and getting support from people who have walked or are walking the ‘exact same' journey can help a lot.
I was not given any diary’s but I have note books going back 25 years where I recorded everything that happened with dates and times….. including treatments, questions I asked my team and answers I got….. drugs was taking and all the mind dumps that was raging at sill-o’clock
The Community is actually divided into dedicated Support Groups (Discussion Rooms) so can I recommend that you look to join and put up your own post in our dedicated……..
Bowel (colon and rectum) cancer
…….. support group. This group is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.
To connect in with the group please click on the link above……. then once the group page opens you will see a [Black - Click to Join - Banner] at the bottom of the page, click in this box and this will then confirm that you have joined the group.
You can then introduce yourself to the group by putting up your very own post by clicking [+ Create new post] or [+] in the top right of the group page.
The Macmillan Support Line is open between 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00…… this service provides cancer information, practical information, emotional support, benefits/financial/work guidance or just a listening ear.
Talking to people ‘face to face’ can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing.
Do get back to me if you need further help navigating the community……. but all the best.
I didn't have the same type of cancer or chemotherapy as you but I was given a chemo diary to record any side effects I had. It also contained a list of side effects along with recommendations as to when I should phone the chemo emergency number.
All the best with your chemo.
Anne
"Never regret a day in your life, good days give you happiness, bad days give you experience"
