Hi, I have had a recent diagnosis of a TSH thyroid secreting adenoma. i keep on being told how rare it is which is scary in itself. i live in Norway and have been told only one other patient has had the same as me. has anyone else the same? I'm 53 and up untill 3 years ago never had anything wrong with me and it has taken all that time to get a doctor to listen to me. But after 10 months of so many tests they finally came up with the diagnosis .
Is there anyone else who has the same it would be so good to hear from someone else
Thanks l
Gabriella
Hi Gabriella/tshbella0052b6 and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
I’m Anne, one of the Community Champions here on the Online Community, and although I haven't had the same diagnosis as you I know how worrying it can be.
The online community is divided into different support groups so I'm going to recommend that you join the pituitary tumour group as you'll then connect directly with others who have the same type of tumour as you.
To join, just click on the link I've created and, once you've joined, you can start a new post in the same way as you did here and join in with existing conversations by clicking on 'reply'.
It would be great if you could put something about your diagnosis and proposed treatment into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
"Never regret a day in your life, good days give you happiness, bad days give you experience"
