Hi, 8 weeks ago I had my stomach and duodenum removed for a rare stomach cancer - a PAWS-GIST. Is there anyone out there with any experience of this type of tumour please?
Hi CatherineDa63bab and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
I’m Anne, one of the Community Champions here on the Online Community, and although I've had different cancer diagnoses to you, I wanted to pop on and point you in the right direction to connect with others who may have had the same diagnosis.
The online community is divided into different support groups so I'm going to recommend that you join the stomach cancer group. To join, just click on the link I've created and, once you've joined, you can start a new post in the same way as you did here and join in with existing conversations by clicking on 'reply'.
It would be great if you could put something about your diagnosis and treatment into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
"Never regret a day in your life, good days give you happiness, bad days give you experience"
