My mum was diagnosed with PTCL around 8 months ago. 6 weeks ago we were told her scans show her lymph nodes have shrunk, and that we will be prepping her for a stem cell transplant that can offer a cure.
Fast forward to two weeks ago, and she starts experiencing a fever and night sweats again. She deteriorated fast to the point of not being able to communicate. Today we found out her cancer is refractory and has spread throughout her abdomen. Her prognosis is now poor.
I am devastated by this, and feel completely blind sided after celebrating not so long ago.
I feel so alone, like a piece of me is detaching and am struggling to come to terms with the fact I may lose her.
Hi Jiji239e95fd and welcome to the Macmillan Community but so sorry to hear about your mum.
It’s so disappointing to hear that your mum went through her treatment but has relapsed before she had her Stem Cell Transplant.
I was diagnosed way back in late 2013 (I had already been living with and treated for incurable CTCL since 1999) with PTCL - NOS…… I went on to have 6 cycles of R-EPOCH, 45 sessions of radiotherapy and 2 Allograft (donor) Stem Cell Transplants (SCT)
So has there been any indication that there is a way to get your mum back into a position to go on to SCT?…… or at least control her Lymphoma?
((hugs))
