Hi everyone
I have just been diagnosed with above, I have been to hospital from April 2025 complaining about lump to be told it was glandular tissue change due to hormones (menopause) I have just turned 49. Beginning of July 2025 the lump had got bigger from 4mm to 3.2cm. I was still complaining about "stingy" pain at my sternum. At breast clinic consultant said he go cut it out under local anastetic so I said yes, it was an abscess told him pain was still there. So basically within 5 weeks had local anastetic 3 times and breast cut open, general anastetic x 2, the 1st GA he explored and found a lump "hid" in my muscle at chest wall, 3 strong antibiotics and then told above diagnosis. Told they couldn't answer questions about prognosis as such a rare finding and more removal of tissue to be examined. I am still waiting on results and I am finding it really hard and so scared as they can't really explain it all.
Sorry for long story but if anyone has this or can give me some reassurance I would greatly appreciate it
Thanks
I didn’t have the same as you, I found lump and was diagnosed with triple negative breast cancer. I refused chemo, but had lumpectomy and radiotherapy which finished last week. Hopefully it has worked and I know it’s not easy but I decided , after a couple of weeks that there was no point worrying as all the worrying in the world wouldn’t change the outcome and the worrying/stress was making me ill.
it doesn’t answer your question but big hugs
Thank you AR66
I really pray it has worked for you and you are right, no amount of worrying is going to take this away. It is difficult not getting any answers about the spindle cell cancer as it is rare so not much to go on but the advanced lobular cancer has more material to read on.
It was very kind of you to respond and I really appreciate it
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