Hello. I am 50 and was diagnosed in Dec 2020 with Stage 4 terminal Her 2 Breast cancer. Radiotherapy, chemo and Steroids kept me going. Was put on Phesgo every 3 weeks and for the last 4 years have been living in denial (apart from hospital appointments and Scans every 12 weeks) as reasonably healthy and well. I did lose my hair and my driving license (I hated loosing my car - that was the worst part!).
Still able to work full time in a job I loved, two kids, a wig and social circle. I was in denial
Roll to Jan this year and I got a shock. I was in severe back pain misdiagnosed as sciatica. I knew they were wrong and pushed for a second opinion. It was then confirmed that my cancer has spread to my spine. 2 radiotherapy sessions, monthly chemo. I now need walking aids, I can walk short distances before needing to sit down.
Its hard, I have to look at changing my life (I live in a 3 storey town house) in so many ways, wheel chair, electric scooter, panic alarm Having to face a change a bit overwhelmed and not managing to stay positive all the time. But Im trying.
Thanks for reading xxx
Hi Rosemaltf6f6d3 and a very warm welcome to the Macmillan Community but sorry to hear about the challenges you are dealing with.
Navigating a cancer journey can be such a stressful and challenging time but getting support from people who have walked or are walking the ‘exact same' journey can help a lot. (I have a completely different journey).
The Community is actually divided into dedicated Support Groups (Discussion Rooms) so can I recommend that you look to join and put up your own post in our dedicated……
Living with incurable cancer - incurable patients only
……. support group.
This group is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.
To connect in with the group please click on the link above then once the group page opens you will see a [Black - Click to Join - Banner] at the bottom of the page, click in this box and this will then confirm that you have joined the group.
You can then introduce yourself to the group by putting up your very own post by clicking [+ Create new post] or [+] in the top right of the group page.
You can copy and paste the text from this post into your new post.
The Macmillan Support Line is open between 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00…… this service provides cancer information, practical information, emotional support, benefits/financial/work guidance or just a listening ear.
Do get back to me if you need further help navigating the community.
