Struggling with uncertainty

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HI 

I'm in new territory waiting for an appointment date, the waiting is tough, my head is racing around.  I've been on HRT since January, I'm 57, it's not been the wonderful solution to menopause that I often see, I've had lots of bleeding.  Eventually I went to a menopause clinic last month and the wonderful doctor there referred me for an ultrasound.  I expected it to be routine but the lining measured 14.8 and I was advised an urgent gynaecological appointment would be needed for a hysteroscopy. It could be polyps, fibroids or womb cancer.  I focused on the lesser of those and felt ok but then my doctor said that I needed to understand that I was being referred for a suspected cancer finding, which really made me very scared.  

My head's been all over the place since while I wait for the gynaecology appointment.  I've not even been diagnosed yet!  I don't know if that's worse or better.  I feel such a burden to my husband constantly talking about what if scenarios from it being nothing to it being everything.  Every ache and pain makes me think it's spread around my body.  As I write this, I'm laughing at myself but it's hard to get rid of the dark thoughts.  

How do people cope with the uncertainty?  I'm trying to be sensible but it sometimes catches me and I feel very scared, panicky.  I do like a plan!

I wish everyone going through any part of this all the very best.  

And thanks for any thoughts, x

  • Hi  

    Im sorry you've found yourself here. Everything you are feeling is totally normal, all I can tell you is what I did while waiting. I kept myself as busy as possible with things I enjoyed and also tried to get as healthy as i could my logic being if I got the news I didn't want i would be better placed to cope. I hope you get good news. Sending hugs. Xx

  • Thank you.  You are right, I do need to keep on being healthy and doing my exercises! Fingers crossed!

  •  https://community.macmillan.org.uk/cancer_types/womb-cancer-forum/ 

    Here is a link to the womb cancer forum. Not everyone in the group has gone on to be diagnosed with cancer and there is an amazing support network and I've found some wise words from knowledgeable people who have been in the same position. 

  • Apologies, realise you have already found us!

  • Thank you so much. I have found you. Feeling the need to chat about everything so did another post. 

  • How do people cope with the uncertainty?  I'm trying to be sensible but it sometimes catches me and I feel very scared, panicky.  I do like a plan!

    Hi  if you are still here in this group. 

    I kept busy and active. Husband and I had a honey fair to attend. We take our honey and meet up with old friends every year. It  was a godsend, though looking at  photos of me in this period I can see the fear in my face.  I had to wait an interminable 6 weeks before my urgent 2 week referral appeared. What helped me was to get everything in order. I run the house and my husband hasn't a clue so I typed everything out into a folder on his computer, made as many hard copies as I felt were needed and wrote a letter to my daughter who lives abroad. I can tell you that one had floods of tears and countless rewrites but you know it got me in the right m mood to accept that they could manage without me which was, apart from the guilt of being a burden, my greatest fear.. It took me ages. When I was done the air was clear and I felt at peace no matter what was to come. My husband said I had changed too. My cancer was different to the one you are being investigated for but I am now chasing 7 years and I am well. All the best to you xx

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Hi Dani

    thank you. What an awful wait you must have had. I am trying to keep busy. Friends and family are being so kind and thoughtful. You are right, they are a godsend. 
    I’m so glad too hear your outcome. 
    Sx