Hi all.
I'm new here and have the above diagnosis. It isn't actually cancer but it's a precancerous condition. It's pretty uncommon and I'm finding it really hard to get support. Does anyone else have this here or know of anyone who does or can point me somewhere else?
I have a 20-40% lifetime chance of developing bladder cancer and my consultant has firmly recommended I have a bladder removal and neobladder constructed. At the moment (it's 2 years since I was diagnosed) I've declined this operation and am opting for surveillance instead but I would love to hear from anybody who has had bladder cancer and has had a neobladder. Or anyone who has KSM or any other premalignant condition?
Many thanks.
Hi Booboo54 and welcome. I notice you have joined the bladder group and I am sure you will get some help from the members there. Best wishes.
