Hi, I'm feeing a little overwhelmed at the moment. I was diagnosed with lung nets in 2011 and had a successful op, monitored until 2015, and given all clear. In 2019, by a fluke, it was discovered i again had lung nets, but now 2 or possibly 3, difficult to tell. I started on Everolimus. There has been continued, if minimal growth between scans. I also started on Lanreotide injections. ((Within 9 months of that diagnosis I found i had breast cancer (not related to the nets) and i again have had surgery.)) At my last appointment i was told that there had been substantial growth between scans and the Everolimus was no longer working as it should. I was told my only course was Targeted Radionuclide Therapy, which is unavailable on the NHS for my condition, and would cost in the region of £90k. Unfortunately I was on my own at the appointment so my head wasn't in the right place. (i did ask about chemo, but was told that it wasn't very effective and side effects weren't worth it. Surgery has always been ruled out because of the location in the lung) My husband has emailed the consultant with questions I wasn't able to ask, but we've yet to have a response. At the moment all I can think about is when am i going to die. I accept it is going to happen, but at the moment i feel lost, not knowing what i need to know. My husband isn't sleeping and we're both trying our best to be positive. I don't know where to go or what to do next.
Hi Buffy618875f2 and a very warm welcome to the Macmillan Community but sorry to hear about your ongoing challenges.
Navigating a cancer journey can be such a stressful and challenging time but getting support from people who have walked or are walking the ‘exact same' journey can help a lot. (I have a completely different cancer).
The Community is actually divided into dedicated Support Groups (Discussion Rooms) so can I recommend that you look to join and put up your own post in our dedicated…….
Living with incurable cancer - incurable patients only
……. support groups. These groups are safe places to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.
To connect in with the group please click on the links above……. then once the group pages open you will see a [Black - Click to Join - Banner] at the bottom of the page, click in this box and this will then confirm that you have joined the group.
You can then introduce yourself to the group by putting up your very own post by clicking [+ Create new post] or [+] in the top right of the group page.
You can copy and paste the text from this post into your new post.
The Macmillan Support Line is open between 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00…… this service provides cancer information, practical information, emotional support, benefits/financial/work guidance or just a listening ear. 
Talking to people ‘face to face’ can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing.
Do get back to me if you need further help navigating the community.
So sorry all that you have been offered now seems out of reach. There is another forum that may be of some help Neuroendocrine Cancer Forum
Just click on the link
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Hi alaxsamc36bd2 and welcome to the community.
What type of cancer do you have?……. or are you supporting someone with cancer, if this is the case what type of cancer do they have?
