Hi Everybody , I am new here and flying in the dark with my husbands recent diagnosis.
In April this year my husband was admitted into hospital and diagnosed with Cholangiocarcinoma , which is Distal bile duct cancer. He was to have a Whipple procedure but unfortunately the tumour could not be surgically removed , the surgeons did try for over 4 hours until they made the decision it was dangerous to proceed.
At first chemotherapy and radiotherapy was on the cards , he was told to wait 6 weeks post surgery before he can speak to an Oncologist.
Currently my husband is in hospital for the 7th time with high infection markers , and his ward consultant explained to him that chemo and radio are no longer an option.
Are there any other treatments he would be applicable for? Has anyone else experienced these issues?
My head is all over the place , We have never dealt with this awful disease before. I am unsure what questions to ask as my brain just feels scrambled. We don't even have any support . I wouldn't know where to begin by asking for help. I would appreciate any advice
Many Thanks
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Hi Deeroya98b7a and a warm welcome to the Macmillan Community but so sorry to hear about your husband’s recent diagnosis and the challenges he is facing.
A cancer diagnosis in the family like this can be such a challenging and stressful time but getting support from others who are dealing with the ‘exact same' support challenges can help you a lot.
The Community is actually divided into dedicated Support Groups (Discussion Rooms) so can I recommend you look to join and post in our…….
……. support group.
This group is a safe place to talk to others who may have a similar diagnosis, treatment experience, to ask questions and get support from family members who are navigating the same support journey.
As for the practical and emotional challenges of supporting your husband and indeed yourself you may benefit from joining and posting in our……
Supporting someone with incurable cancer
……. support groups where you will connect with a wide range of members navigating the exact same support challenges.
To connect with a group click on the “Bold Italic Links” I have created above …… then once the group page opens click in the [Black - Click to Join - Banner] that appears at the bottom of the page and this will then confirm that you have joined the group.
When you are ready……. you can introduce yourself by putting up your very own post by clicking [+ Create new post] or [+] in the top right of the group page.
You can copy and paste the text from this post into your new post.
It is an emotional time supporting family so you might find this Macmillan information your feelings when someone has cancer helpful as well as this link getting help with your emotions.
The Macmillan Support Line is open between 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00…… this service provides cancer information, practical information, emotional support or just a listening ear.
Talking to people ‘face to face’ can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing.
Do get back to me if you need further help navigating the community.
