I have just had a meeting with urology department to get my biopsy results. I was told the tumour on my bladder is T3 and they are advising I have a full removal of my bladder and prostate , this was not the news I was hoping for and its reallt messing with my head . Am struggling to come to terms with having a stoma, I feel like a part of me is being taken away and I have no control over things , I was hoping with all the changes I had made I would have a more positive outcome. They did say I could possible habe 3 months of chemo but I coild still loose my bladder, and during this time due to the tumor being aggressive it could spread and things coild get alot worse . Am due to meet with oncologist next week and they have booked me in for surgery in 3 weeks.
Its all become so real as I dont feel ill, since I found out I had cancer I have changed my diet made massive changes in my life ,.its feels like all those changes dosnt make a difference.
Hi Alec
Welcome to the Online Community.
I am sorry to hear of your diagnosis of bladder cancer. I understand that it is hard when you are told that you need such big surgery. It is understandable to be struggling at the thought of having a stoma.
The online community is divided into sections for cancer types and experiences and I wonder whether it would be helpful to have a look at these groups. Sometimes it can help to talk to those who have had a similar experience.
Bladder cancer support forum | Macmillan Online Community
Ileostomy, colostomy and stoma forum | Macmillan Online Community
It may well be worth having a look at the Prostate group as there may be gentlemen there who have had a similar surgery.
Prostate cancer forum | Macmillan Online Community
Being diagnosed with cancer can feel very overwhelming and it can be a time where there are lots of questions, decisions to make and also waiting. if it would help to talk to someone then please do give the Support Line a call. They are there from 8am-8pm daily.
I hope that your appointment next week goes as well as it can. In the meantime we are here if you need us.
Jane
