Ampullary Adenocarcinoma - Diagnosed 28th June 2025 following urgent ERCP - Biopsy results confirmed cancer 2 weeks later.
Was scheduled for Whipple on Monday 11th August at Royal Free in London. Had all pre-op checks, blood tests etc, hotel booked and bag packed.
Spoke with anaesthetist today for final checks and told them I am about to finish course of antibiotics for a ?? chest infection that I've had for about 10 days.
I saw my GP as soon as I suspected a chest infection just to be on the safe side as I didn't want anything to stop the procedure going ahead.
Feeling much better with reduced coughing, no fever and feel fine generally but surgeons decided it would be safer to postpone the procedure for 2 weeks.
I am completely beside myself !! I understand it would have been too risky but just don't know how i'm going to get through another two weeks with this thing potentially growing and making the prognosis worse. All other tests so far have not indicated any spread but so worried this delay could change that. Just wanted it all to be over.
Cant believe I get a chest infection in summer- never had one before !! They say things happen for a reason - really !!!
Hi stephanie845 and a very warm welcome to the Macmillan Community but sorry to hear about the challenges you are dealing with.
Having been on my cancer journey for over 25 years these things unfortunately happen but from my experience the delays did not make a difference so let’s look for this to get back on track.
Navigating a cancer journey can be such a stressful and challenging time but getting support from people who have walked or are walking the ‘exact same' journey can help a lot. (I have a completely different cancer).
As you see the Community is actually divided into dedicated Support Groups (Discussion Rooms) and I do see that you have already joined our dedicated…..
…… support group.
This group is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.
To connect in with the group please click on the link above…….then you can then introduce yourself to the group by putting up your very own post by clicking [+ Create new post] or [+] in the top right of the group page.
You can copy and paste the text from this post into your new post.
The Macmillan Support Line is open between 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00…… this service provides cancer information, practical information, emotional support, benefits/financial/work guidance or just a listening ear.
Talking to people ‘face to face’ can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing.
Do get back to me if you need further help navigating the community.
