Ok here i go

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Ill just do bullet points on this one. I may not respond for a bit. 

  • Mother in law 4 years ovarian on maintenance meds
  • Wife diagnosed 6 weeks ago already gone to lots of places and had if for just over 4 months
  • CA125 was 670 and she told me over a glass of wine on a sunny afternoon
  • NHS flipped the warp speed button
  • In the chair for 1st chemotherapy session before the MDT. Now know CA gone to over 1200 when she sat in chair now down to 480
  • Sworn to secrecy so can't tell our kids or anyone until 1s
  • Bad reaction so need to work ot what and was in hospital 4 days. Elder kids saw a distressing thing and no idea how to deal
  • Today was suppodexto be 2nd full infusion bit only had 45 mins of one to see what the allergy is from
  • Hair gone at breakneck speed
  • Mum just grabbed her from the same place and the same expert team who are treating her
  • Say in my kitchen being told to keep calm and carry on like she's just come bsck from having a filing at the dentist
  • When it comes to the kids,  who are all 25-35 I'm struggling to
  1. Explain the unexplainable 
  2. Appear rational when everything is irrational
  3. Describe the indescribable 
  • Hi  and a warm welcome to the Macmillan Community but so sorry to hear about the journey your family has been on.

    A cancer diagnosis in the family can be such a challenging and stressful time but getting support from others who are dealing with the ‘exact same' cancer or cancer support challenges can help a lot.

    The Community is actually divided into dedicated Support Groups (Discussion Rooms)……… if you care to have a look through this link Cancer Specific Groups you will find all our dedicated cancer support groups listed.

    These groups are safe places to talk to others who may have a similar diagnosis, treatment experience, to ask questions and get support from family members who are navigating the same journey.

    Have a look through the LIST above and once you find the support group for you…….. click on the link and when the group page opens you will see a [Black - Click to Join - Banner] at the bottom of the page, click in this box and this will then confirm that you have joined the group.

    When you are ready……. you can introduce yourself by putting up your very own post by clicking [+ Create new post] or [+] in the top right of the group page.

    You can copy and paste the text from this post into your new post.

    As for the practical and emotional challenges of supporting your family and indeed yourself you may benefit from joining and posting in our……..

    Carers only

    Supporting someone with incurable cancer

    ……support groups where you will connect with others navigating the same support challenges.

    It is an emotional time supporting family so you might find this Macmillan information your feelings when someone has cancer helpful as well as this link getting help with your emotions.

    The Macmillan Support Line is open between 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00…… this service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.

    Talking to people ‘face to face’ can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing.

    Do get back to me if you need further help navigating the community.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

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