Hi All,
I'm seeking any sort of advice/support that I (21y/o F) can get about my Mum's (46y/o F) diagnosis of Metastatic Meningioma.
For context, back in 2021, my Mum was diagnosed with triple negative breast cancer. She went underwent, chemotherapy, a lumpectomy and radiotherapy, all of which was successful and gave her the all clear in 2023.
She fell ill at the end of May this year which after a month of GP appointments, different medications, scans and hospital visits uncovered that she has Metastatic Meningioma which has bene explained to us a a very rare cancer. In her case she has a tumour in the lining of her brain and one on her spine. My family's world has been absolutely shattered. There are no treatments that can be offered to cure her and I'm struggling to come terms with the idea that I'm losing the most important person in my life. I visit her everyday (she is now in a hospice) but struggling doesn't even explain how I feel.
I have a great support network of family, friends and my partner, but wanted to turn to anyone else who might have been through or is going through something similar.
I have an incredibly close relationship with my Mum, she's my world and I can't fathom that we're losing her. She has been unbelievably strong from her very first diagnosis in 2021 up to now and often reminds me that 'some people step out of their front doors and don't come home to their loved ones' and that we're lucky to have been given time that we can spend with her. But the thought of living without her is just unimaginable.
I've know about Macmillan for a few years now, but with our situation, I thought trying to turn to you lovely people might be able to help me in some way.
Thank you in advance.
Hi bellrose19 and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
I’m Anne, one of the Community Champions here on the Online Community, and although I don't have secondary breast cancer I was diagnosed with TNBC the year after your mum.
The online community is divided into different support groups so I'm going to recommend that you join the secondary breast cancer group, as you'll then connect directly with others who have the same type of cancer as your mum, and also the supporting someone with incurable cancer group which is a great place to share your worries and emotions with others who have a loved one with incurable cancer.
To join, just click on the link I've created and, once you've joined, you can start a new post in the same way as you did here and join in with existing conversations by clicking on 'reply'.
It would be great if you could put something about your mum's diagnosis and proposed treatment into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
"Never regret a day in your life, good days give you happiness, bad days give you experience"
