LAMN1 diagnosis

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Evening all,

Male 32, had surgery December 2024 and found out I had LAMN1. Didn’t need anything else apart from surgery. Just had my 18months check up, waiting on the results. I’ve got a few aches where my appendix were so my anxiety is through the roof, I always think the worst. Anyone had similar? Thanks 

  • Hi  and a very warm welcome to the Macmillan Community.

    The Community is actually divided into dedicated Support Groups (Discussion Rooms) so can I recommend that you look to join and put up your own post in our dedicated Pseudomyxoma peritonei  Support Group.

    This group is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.

    To connect in with the group please click on the link above and once the group page opens you will see a [Black - Click to Join - Banner] at the bottom of the page, click in this box and this will then confirm that you have joined the group.

    You can then introduce yourself to the group by putting up your very own post by clicking [+ Create new post] or [+] in the top right of the group page.

    You can copy and paste the text from this post into your new post.

    Do get back to me if you need further help navigating the community.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

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