Melanoma recurrence

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Hi, I’m new to the group. I had an accral melanoma removed 6 years ago and it has metastised to the calf and is now Stage 3. I had a wide local excision and a skin graft yesterday.

Waiting to see if I’m a candidate for immunotherapy. Has anyone had immunotherapy and what side effects are likely ?

  • I’m receiving immunotherapy every 6 weeks. Fortunately I’m in perfect health and the only side effects I’ve had are skin related. Spots, now some pale skin pigments.  Cortisol creams have greatly helped. 
    NB Stay positive.  You’ll be fine. Wonderful treatment. Good luck. 

  • Hi  and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.

    I’m Anne, one of the Community Champions here on the Online Community, and I was diagnosed with melanoma nearly 9 years ago but haven't had immunotherapy.

    The online community is divided into different support groups so I'm going to recommend that you join us over in the melanoma group as you'll then connect directly with others who do have experience with immunotherapy.

    To join, just click on the link I've created and, once you've joined, you can start a new post in the same way as you did here and join in with existing conversations by clicking on 'reply'.

    It would be great if you could put something about your diagnosis and treatment into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

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     "Never regret a day in your life, good days give you happiness, bad days give you experience"