Hi everyone I desperately need your help and advice. I was diagnosed with prostate cancer two months ago My PSA was 18, initial MRI scan showed that the cancer was contained within the prostate and biopsy showed I had a Gleason 3+4. Since then I have had an isotope bone and CT scan which I have just been informed confirmed the cancer for now had not metastasised. The recommendation was that I have surgery, via robotic radical prostatectomy but the side effects of abdominal scarring (five insistions), bladder incontinence (possibly temporary), erectile dysfunction (again possibly temporary) reduction in penile length and dry orgasms really concerns me. I was told (and read online) that although radiotherapy (both the external and internal treatment) will naturally circumvent the scarring and reduction in penile length, there would still be dry orgasms and the long term (3 months to 2 years) bladder incontinence and erectile dysfunction could be more severe or permanent. I am 57 with no children. I was told (or it was suggested) that just surviving this disease should be my priority but the reason I’m struggling to make a decision is I am beginning to feel the quality of that survival is if not just as important…perhaps more.
I guess my question is, does anyone have any advice as to how to choose between the two options. Have you had radiotherapy and have any advice as to what to insist upon to minimise the late effects of bladder incontinence and erectile dysfunction.
I am wary that every moment I delay making a decision gives the disease opportunity to spread. Please help if you can and thank you for reading this far.
Hello Ethan (Ethan)
A warm welcome to the Macmillan Online Community - although I am so sorry to find you here. I am Brian one of the Community Champions here at Macmillan and I am in the 4th year of my personal Prostate Cancer journey.
I know you have joined the Prostate Group - I suggest you copy and paste the above post in the "New Here - Say Hello" section on the Prostate Group - you will get plenty of help and advice.
If you look at my last post on this thread:
Probable' PSMA PET scan - what will decide?
It answers most of your question.
I hope this helps.
Best wishes - Brian.
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At 57 with Gleason 3+4 and no spread, both surgery and radiotherapy work. Surgery often means quicker cancer removal but temporary incontinence and ED. Radiotherapy avoids surgery but can cause longer-lasting side effects. Ask about nerve-sparing surgery or protective gels for radiotherapy. Pelvic floor exercises and ED treatment help recovery. Decide what matters more to you, cancer control or quality of life, and get a second opinion before deciding.
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