Hi, I'm 42, and navigating suspected Ovarian cancer, I have a large complex, sinister cyst, 19cm by 18cm, I don't have alot of information currently, I'm due to see specialists on Wednesday, but after a panel review of the scans and bloods, scans showed the large cyst, and 3 fibroids, ca125 level is extreamly raised, but they cannot give a difinitive answer they have proposed the way forward is a full hysterectomy including appendix, it will will then be tested which could incure chemo afterwoods. It's all come as a huge shock, I guess I'm asking if anyone has or is going through similar, what was recovery like from a full hysterectomy?, any advice or info, is appreciated.
Hi Betty22 and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
I’m Anne, one of the Community Champions here on the Online Community, and I'm sorry to read that you're currently being investigated for possible ovarian cancer.
The online community is divided into different support groups so I'm going to recommend that you join the ovarian cancer group as you'll then connect directly with others who have had a hysterectomy.
To join, just click on the link I've created and, once you've joined, you can start a new post in the same way as you did here and join in with existing conversations by clicking on 'reply'.
It would be great if you could put something about your diagnosis and proposed treatment into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
"Never regret a day in your life, good days give you happiness, bad days give you experience"
