Hello.. I’m new here. I am currently under investigation due to change in bowel habits, severe fatigue, slightly swollen lymph nodes in groin (plus one larger lump) and rising CA125 blood results (amongst other things). CA125 level was 71 and now 81 (taken 3 months apart). I have had pelvic and abdominal ultrasounds (no pathology found), colonoscopy (appears normal but still waiting on random biopsy results) and chest X-ray. Chest X-ray shows “large lung volume suggesting obstructive lung disease). I am yet to discuss X-ray with GP and am awaiting a womb biopsy from gynaecology on Wednesday at the hospital (they agreed to accept the urgent advice and guidance request as a referral due to rising CA125 levels and symptoms). They seem to be focusing on ovarian and womb cancer.
I cannot shake from my mind that I have some form of cancer. I just don’t feel right. Even though all organs appear normal on ultrasounds and nothing else seen on chest X-ray.. my brother had Hodgkin Lymphoma aged 36 (I am 38). I feel so unwell in general and weak/fatigued these past few months and getting the bloating, abdominal discomfort etc. Mornings are the absolute worst, I can barely get out of bed. Plus itching intermittently and not healing well from cuts etc.
Has anyone else had all these tests with apparently no pathology found but then later found it was indeed cancer? Or even leukaemia?? I seem to have all these symptoms to suggest something is very wrong but there has been no talk of lymph node biopsy yet..
Also to mention, I did have low ferritin and folate levels 3 months ago (although after taking iron tablets my ferritin has come up slightly) and have consistently low lymphocytes 1.4 as well as a few other borderline results.
Hi AMG20 and welcome to the Macmillan Community but so sorry to hear about your ongoing concerns……. I do hope you get answers soon.
I was diagnosed way back in 1999 at 44 with a rare (8 in a million) incurable but treatable type of Cutaneous T-Cell Non Hodgkin’s Lymphoma and the only symptom I had was a developing rash….. nothing else.
I continued to work teaching on a full timetable for 12 years then I eventually reaching Stage 4a in late 2013 when a second, also rare (4 in a million) type of aggressive Peripheral T-Cell Non Hodgkin’s Lymphoma was then presenting when mass the size of a brick developed on my neck…… but I am still here living a great life.
Should you eventually be diagnosed with cancer you can look through this link Cancer Specific Groups where you will find all our dedicated cancer support groups listed.
These groups are safe places to talk to others who may have a similar diagnosis, treatment experience, to ask questions and get support from members who are navigating the exact same journey.
The Macmillan Support Line is open between 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00…… this service provides cancer information, practical information, emotional support or just a listening ear.
Always around to chat.
