Sorry for the massive post, new to page.
My husband has recently been diagnosed with a Glioblastoma, he had a very small issue with his speech for about 20 mins which we were advised was a seizure, nothing before and nothing since, thank goodness I called the ambulance, he had a CT and they found a tumour including a cyst measuring 3.5x 3.2 x 2.3 cm, he had an awake craniotomy three weeks later with the ‘pink drink’ to remove it and the surgeon stated that he believed he had got it all, a follow up contrast MRI was carried out the next day which was also clear. He went home the day after his surgery and has had no problems since even going back to work (working from home) not even a headache. We then received the devastating diagnosis 4days later, since then our world had been turned upside down, he starts his radiotherapy and chemotherapy next week and seems to be taking it all in his stride me however cannot seem to get my head around it. It just seems so unreal as he hasn’t changed at all and isn’t ill or showing any symptoms even his scar is insignificant. He does now however seem to be pulling away from me and I just don’t know what to do to support him, everyone is messaging me to see how he’s doing but I don’t know who to get support from. I feel really selfish as I know this isn’t happening to me but I feel so utterly helpless and alone. I’m trying to remain positive as he is as the oncologist put it ‘in the best place in a bad situation’ but it is very difficult and to make matters worse we have a holiday booked in October and can’t seem to get insurance for him, I just feel that everything is against us.
so sorry this seems like a rant
Hi Rakey and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
I’m Anne, one of the Community Champions here on the Online Community, and I'm sorry to read about how much is happening to you and your husband right now.
The online community is divided into different support groups so I'm going to recommend a few for you to join where you can ask questions and get support. The first is the glioblastoma group as you'll then connect directly with other people affected by this type of cancer.
The next is the carers only group where you can share your worries and emotions with others who are supporting someone living with cancer, and the final one is the travel insurance group where you'll find lots of recommendations for travel insurers to try so that you can go on your holiday in October. Once you've joined the travel insurance group have a look through the threads there called 'Recommended Travel Insurance' and Recommended travel insurance 2023-24', which you'll find on the first page. They are full of recommendations from other cancer patients who have got travel insurance.
To join these groups, just click on the links I've created and, once you've joined, you can start a new post in the same way as you did here and join in with existing conversations by clicking on 'reply'.
It would be great if you could put something about your husband's diagnosis and treatment into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
"Never regret a day in your life, good days give you happiness, bad days give you experience"
