Hello, new here and very very scared. Diagnosed on Tuesday with multicentric Tnbc stage 2 grade 3. Waiting for results of biopsy on 2nd mass before being able to see an oncologist. Have been told will need 3-6 months of chemo before surgery. Have a good support network but feel so very alone. Any advice would be appreciated
Hi,so sorry to hear you have bc.I was diagnosed with tnbc in May last year age 33 .you will get through this!it is a very busy time at the start with different test and your head will be all over the place.I cried alot the first day in the chemo unit n after that I was okay I think it is the unknown for me that was the worst.Have they mentioned giving you Immunotherapy?I think all triple negative is grade 3 so don't get this mixed up with the stage.I got immunotherapy every 3 weeks and carboplatin and paxitaxil ever week for 12 weeks(cut short due to body reaction),then AC for four times every 3 weeks.I am currently out the other side had lumpectomy,radiation and now on oral chemo and finishing out the immunotherapy (think need to 17 in total).you've got this! To be honest dn't be worrying too much about side effects it just depends on how body will react and they will give you steroids n anti sickness tabs to manage side effects.
Hi Dolly Dee and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
I’m Anne, one of the Community Champions here on the Online Community, and I was diagnosed with Stage 1 Grade 3 TNBC in April 2022. I had a lumpectomy followed by chemotherapy and radiotherapy.
The online community is divided into different support groups so I'm going to recommend that you join both the breast cancer and triple negative breast cancer groups as you'll then connect directly with others who have the same type of cancer as yourself. There you can ask questions, share experiences and get support.
To join, just click on the links I've created and, once you've joined, you can start a new post in the same way as you did here and join in with existing conversations by clicking on 'reply'.
It would be great if you could put something about your diagnosis and proposed treatment into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
Hi Breasty and a very warm welcome to you too.
I hope you don't mind me suggesting that you also join the two groups that I've pointed Dolly Dee to. I'm sure the members of those groups would benefit from your experience.
To join just follow the links in my reply above and then introduce yourself to the groups when you're ready.
If you have any problems navigating the community I'll be pleased to help.
Anne
Hi there
Just got same diagnosis as you today. Yes it is so scary, but I’m just living each week as it comes. Seeing oncologist next week for the plan, what type of chemo, how often etc, but was told today will probably be 4-5 months chemo then lumpectomy, then radiotherapy so I’m being totally positive and hoping treatment finished in 2025. 2026 will be a better year.
sorry it’s not really advice just your not alone take care x
Hi AR66, thanks for your reply. It does help to know we are not alone. I'm glad you have your oncology appointment so soon and I hope it goes as well as it can.
I have multicentric masses so have to wait for more results to come back before I can see the oncologist but hopefully won't be too long. Also got to have an MRI so waiting for appointment for that. The waiting is the worst I think as my mind won't switch off.
Good luck for next week x
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