I have recently had an mri scan for what I had been diagnosed as by GP surgery a trapped nerve presenting as pins and needles in my arm and numbness in my fingers, however results show many lesions to first 12 vertebrae (the only ones scanned).
i have since had CT scan and more mri scans to all the spine and I am waiting for nuclear bone scan next month to be followed up with consultation with oncologist.
Very unfortunately I have had this misdiagnosis for 15 months after returning to GP and being given anti inflammatories then being referred to a physiotherapist for hand exercises.
I had no idea this is red flag for secondary breast cancer. I had primary breast cancer 5 years ago.
i am now experiencing pain is my spine and ribs and neck.
i have still to wait another 3 weeks to see the oncologist with results of scans. Although diagnosed cancer is still spreading.
i fear that as it has been left untreated for what will be almost 18 months it will be too late for anything.
I’m having to take sleeping tablets and am finding it very difficult.
Hi Nadine and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
I’m Anne, one of the Community Champions here on the Online Community, and I'm sorry to read about your recent diagnosis.
The online community is divided into different support groups so I'm going to recommend that you join the secondary breast cancer group, which is a great place to ask questions, share experiences and get support.
To join, just click on the link I've created and, once you've joined, you can start a new post in the same way as you did here and join in with existing conversations by clicking on 'reply'.
It would be great if you could put something about your diagnosis and treatment into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
"Never regret a day in your life, good days give you happiness, bad days give you experience"
