Hi everyone.
On Tuesday this week I was taken into hospital with known gallbladder issues. Whilst in A&E I was sent for a CT (with contrast) scan, and when the results came back the doctor said they had identified a 1.7mm ‘lesion’ on my kidney. When I asked what that meant he said it could be a cyst or a tumour, but he had referred it to urology.
I was admitted on the gastro ward who were concentrating mainly on my liver as my bloods were deranged and they were unsure why. An MRI scan identified that there’s stones stuck in my bile duct so they think that’s what’s causing that.
when I spoke to the doctors about my kidney they said urology were aware of it, then the next day it was that my case had been referred to the MDT.
I was discharged last night - the nurse brought my discharge papers as the doctors were dealing with a critical patient. I had a quick read of the papers and she couldn’t answer any questions I had, she was a gastro nurse and knew nothing about my kidney.
The discharge papers state there’s a 17mm lesion suspicious of neoplasia, I’m on the 2 week wait list with urology and need a CT renal & thorax. Obviously I googled things because the nurse had no clue and now I’m petrified. When I came home, read them properly again and tried to digest everything I realised that the terminology used by the doctors had changed, the word cyst hadn’t been used since the first doctor. The way that the doctors after him spoke to me about it was definitely different. One doctor relied ‘well yes, of course’ when I asked him if I should be worried about. I keep thinking that if it wasn’t anything serious then urology would have known, and because it’s been sent on to the MDT then it’s not great.
Due I just assume that someone will be in touch from urology? I’m scared, my father in law is still recovering from complications of cancer surgery two years ago and I’m not sure how much more my family can cope with.
thanks for any advice!
Hi MrsB1984 and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
I’m Anne, one of the Community Champions here on the Online Community and I know how stressful waiting for tests and results of tests can be.
The online community is divided into different support groups so I'm going to recommend that you join the kidney cancer group, not because that is what I think you have but because you'll then connect directly with others who have had investigations on their kidney. There you can ask questions, share experiences and get support.
To join, just click on the link I've created and, once you've joined, you can start a new post in the same way as you did here and join in with existing conversations by clicking on 'reply'.
((hugs))
"Never regret a day in your life, good days give you happiness, bad days give you experience"
