After bleeding continuously and being referred to gynaecology in March of 2022, I was finally seen in August of 2024. Multiple tests, scans etc I was diagnosed with a large metastatic carcinoma in the uterus. Needing to make sure it hadn't spread to my lungs, I was referred for a thoracic scan. This showed 2 large lumps near the left breast. A PET scan showed 2 large and 3 smaller lumps. Following a biopsy I was diagnosed with ER HER2 positive breast cancer. My first round of chemo was on 12 April 2025. I tried the cold cap to try and preserve some of my hair, but after 2 sessions it has almost all fallen out. I found the cap excruciating and it left me with a banging headache long after the session was finished. It also added extra hours onto the chemo session and I have decided not to do it again. The filgrastim injections rendered me bed ridden with very strong flu like symptoms. I literally slept for 3 consecutive days and had a runny tummy through-out. I am currently on my 2nd session of injections and have coped better this time. I am achy and tired, but not anywhere on the level as before. My 2nd lot of chemo has left me with "chemical burns" on my chest and I have been prescribed cortisone cream for it. I have also started to get mouth sores and have invested in a really soft bristle rush and some Difflam mouthwash. This is only the beginning of my journey and so far the hardest part has been the hair loss. It's once thing knowing or expecting it but another having to face great big bunches of hair on your brush, pillow etc.
This forum has definitely helped me understand that everyone's journey is completely different but just as hard. Everyone has different reactions and side effects but the low moods hit us all. I am trying to celebrate the wins - no matter how small - even though it's really hard to find the positives at times.
Macmillan have been amazing - Thank you
Hi Kachina and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
I’m Anne, one of the Community Champions here on the Online Community, and like you I've had two primary cancers although not at the same time.
The online community is divided into different support groups so I'm going to recommend that besides joining the breast cancer group you also join the womb cancer group. Both are great places to ask questions, share experiences and get support.
To join, just click on the link I've created and, once you've joined, you can start a new post in the same way as you did here and join in with existing conversations by clicking on 'reply'.
It would be great if you could put something about your diagnoses and proposed treatment into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
"Never regret a day in your life, good days give you happiness, bad days give you experience"
