Hi everyone,
I’ve recently (2nd April 2025) been diagnosed with stage 4 bowel cancer, its spread to my lungs and liver and I just don’t know how to cope with this news. I have an oncology appointment next week to discuss treatment options but have been told this is not curable.
Everyone keeps telling me to stay positive but I feel really ill at the moment, I certainly don’t feel strong enough for chemo etc. I’ve lost a lot of weight and I am struggling to maintain as I have no appetite. I’m currently in a position where my day consists of forcing meds, shakes and food in my mouth and being in pain. I feel so weak and low, I just don’t know how to get out of this.
I have the full support of my husband, family and friends etc. it’s taking such a toll on my husband though, he is barley coping and I don’t know what to do.
Hi Feelingscared and a very warm welcome to the Macmillan Community but sorry to hear about your diagnosis.
Navigating a cancer journey can be such a stressful and challenging time but getting support from people who have walked or are walking the ‘exact same' journey can help a lot. (I have lived with and been treated for completely different incurable cancer fir the past 24+ years)
The Community is actually divided into dedicated Support Groups (Discussion Rooms) so can I recommend that you look to join and put up your own post in our dedicated…….
Bowel (colon and rectum) cancer
…… support groups. These groups are safe places to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.
To connect in with a group please click on the link(s) above then once the group pages open you will see a [Black - Click to Join - Banner] at the bottom of the page, click in this box and this will then confirm that you have joined the group.
You can then introduce yourself to the group by putting up your very own post by clicking [+ Create new post] or [+] in the top right of the group page.
You can copy and paste the text from this post into your new post.
You may also want to look at our dedicated…..
Living with incurable cancer - incurable patients only
…….. support groups.
The Macmillan Support Line is open between 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00…… this service provides cancer information, practical information, emotional support, benefits/financial/work guidance or just a listening ear.
Talking to people ‘face to face’ can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing.
Do get back to me if you need further help navigating the community.
