About 6 week ago, our dad was diagnosed with terminal kidney cancer. About 4 years ago he had a kidney removed and everything seemed to be fine. He has been having scan every three months as part of a trial. They found a lesion on his lung which, was diagnosed as terminal. Since then, he is losing his memory and using the wrong words. It was confirmed two weeks ago it is now in his brain. He has had one immunotherapy session and is now in hospital with diarrhoea.
It feels like everything is happening so fast and we haven't had time to understand what we need to do and when. I hoping some help from this community will help clear the unknown and fog.
Thank you in advance.
Hi Katz2025 and a warm welcome to the Macmillan Community but so sorry to hear about your dad.
A cancer diagnosis like this in the family can be such a challenging and stressful time but getting support from others who are dealing with the ‘exact same' support challenges can help you a lot……. Although I have an incurable cancer I have a completely different type of cancer and treatment journey.
The Community is actually divided into dedicated Support Groups (Discussion Rooms) and when it comes to the practical and emotional challenges of supporting your dad and indeed yourself you may benefit from joining and posting in our……
Carers only (if you are his caregiver)
Supporting someone with incurable cancer
……. support groups where you will connect with a wide range of members navigating the exact same support challenges.
To connect with a group click on the “Bold Italic Links” I have created above …… then once the group page opens click in the [Black - Click to Join - Banner] that appears at the bottom of the page and this will then confirm that you have joined the group.
When you are ready……. you can introduce yourself by putting up your very own post by clicking [+ Create new post] or [+] in the top right of the group page.
You can copy and paste the text from this post into your new post.
It is an emotional time supporting family so you might find this Macmillan information your feelings when someone has cancer helpful as well as this link getting help with your emotions.
The Macmillan Support Line is open between 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00…… this service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.
Talking to people ‘face to face’ can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing.
Do get back to me if you need further help navigating the community.
Thank you for your advice and pointing me in the right direction
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
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