Hello there, everyone!
Our 28 year old daughter has been diagnosed with grade 3 and TNBC ! That was the C- BOMB which hit us all to the day, 2 weeks ago. Everyone is still trying to come to terms with this... Everyone in their own way. What makes the situation even worse is, that our daughter is in the UK, we- her parents - are in Denmark, where we moved to over 4 years ago- and her brother- our son- is in Stockholm. The last two weeks have been a total overwhelming turmoil of shock, fear, worry, phone calls, re searching, bewildering medical terms, gathering family medical information also. I'm sure you all now all this only too well yourselves?!
The only good thing right now is, that appointments are made very quickly and not many days are in-between test, speaking to different consultants also. Coming Monday she will have her MRI . Yesterday she had her results from the CT scan... which was such a enormously huge worry and very, VERY scary... thankfully , the cancer has NOT spread ! WHAT A HUGE , INCREDIBLE RELIEF!!!
Unfortunately there is a lot of cancer on my fathers side... so our daughter was told, that they will also make the genetic test... I have also an appointment with my doctor to discuss the test... and if our daughter will have that faulty gene, then our son (26) also want to be tested...
I'm using also an other forum , which I'm very fond of... May some of the ladies from there are on here also ?! I wasn't sure, if that was an OK thing to do... to use different sides forums but apparently loads of people do that... which - knowing this now- makes me feel more in ease...
As always... please stay strong, never stop fighting and never give up hope... wishing you all the best,
T
Hi QuoVadis and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
I’m Anne, one of the Community Champions here on the Online Community, and I was diagnosed with grade 3 TNBC in 2022 so know how worrying everything will feel right now.
The online community is divided into different support groups so I'm going to recommend that you join the triple negative breast cancer group, which is a great place to ask questions and share experiences about your daughter's diagnosis and treatment.
To join, just click on the link I've created and, once you've joined, you can start a new post in the same way as you did here and join in with existing conversations by clicking on 'reply'.
I can see that you've already found and joined the family and friends group which is a safe and supportive place to talk about your worries and emotions.
It would be great if you could put something about your daughter's diagnosis and tests to date into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
"Never regret a day in your life, good days give you happiness, bad days give you experience"
hello latchbrook !
thank you so nuch, for your kind reply and saying hello yesterday ! it was very much apprechiated, to reach out and give all the info and sharing your very personal details !!
i did join the TNBC group on here and trying to get my head around to create a profile- as you mentioned- so that it is easier for everyone on here, to figure what is going on and what my daughter and i are all about... so please bare with me on this one 
i will keep this one short, as i get set up first properly on here...
but so nice to MEET you, anne !! be sure for me to be back, writing and asking- pestering you- a lot
hope you can enjoy your sunday in a way positive to you !!
T
