I last used the MacMillan online forum 15 years ago when I was caring for my father who had terminal cancer. I’ve returned because I’m now caring for my husband who has bladder cancer with secondary tumours now in his lungs. We’ve been through a lot since the first diagnosis in 2021: he had a kidney removed, a number of interventions to remove tumours from his bladder, then surgery to remove his bladder & prostate. Once we’d learnt to manage his ureterostomy things went well for a while, then his remaining kidney started to fail & the lung tumours were found. He’s had chemotherapy & has just started immunotherapy. We live in Spain & I speak better Spanish than him so I do a lot of interpreting. We’re lucky to have been given a home carer for 2.5 hours a day & the local cancer association offers counselling & other support. But it still feels difficult at times & I find the responsibilities tough going. There’s a lot of different forums, so an idea of which ones to use would be useful!
Hi Miranda t and I am sorry to see why you are back on the community….. this is such a hard time full of practical and emotional challenges as you are supporting your husband and indeed yourself.
As to where to connect in the community I do see that you have already been posting in our Carers only support group…… and I also see that you have joined our Living with cancer outside the UK group as well.
You may find our Supporting someone with incurable cancer helpful if this group fits in with how things are going.
Our helpline is available from outside the UK - open 7 days a week 8am-8pm (UK time) on: +44 207 0912230 email or live webchat
We also have our Ask an Expert section but do allow 3 working days for a reply.
((Hugs))
