New to site, husband just diagnosed

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Husband has a huge prosthetic sarcoma, shock and fear have taken over

  • I understand. My wife has been diagnosed with oesophageal cancer and the prognosis is not good. Shock, fear, disbelief. Sometimes feel helpless.

  • So sorry to hear this. My husband is on his third cancer diagnosis. He has been very positive so far so I hope he can keep that attitude up this time. I found that just focussing on the next step helped me with the previous treatments.

  • So sorry, I hope she is comfortable, I think the hardest thing is seeing them in pain and not being able to help. Best wishes to you both.

  • Bless you both, I find we just settle with the situation and then new news comes in and time to adjust all over again.

    one day at a time I’m finding is best and not trying to predict the future. I’m glad he is staying fairly positive and hope you can too. Look after yourself.

  • Hi  and welcome to the community. 

    I have read your profile and am sorry to see what your husband is going through and facing. 

    I had a different cancer, but had a very similar surgery to that which your husband will have, so I can understand how scary and overwhelming that can feel (details are in my profile). 

    In addition to the groups you have already joined, we also have a group for support with living with stomas which might be helpful for you to join. The link is here

    Stoma Support Forum

    You'd be very welcome to join us there and ask any questions about either type of stoma.  I have 2 permanent stomas-colostomy and urostomy, and I understand the fear you will both have about this massive and life changing surgery. 

    I’m glad to see that you are trying to stay positive, but can’t deny that this will be tough for you both. If I can give you any encouragement, it would be to say that I’m coming up to 5 years from my surgery, and there is a good life to be had, though recovery is long. 

    I hope you both have a good support network going forward, and that you are looking after yourself too-it’s hard to be the carer watching from the sidelines, but keep talking things through and steady yourselves for what lies ahead.

    I’m happy to try and answer any questions if I can, based on my own experience of this.

    Sarah xx


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