HAve now been told the BCG treatment no longer working , and cancer has broke through to my bladder wall to the muscle. If fit enough I will need to have my bladder removed only if fit . Don't know much about this , worried about how I will feel and pain after this.
BRLU
Hi Brlu and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
I’m Anne, one of the Community Champions here on the Online Community, and although I haven't had the same type of cancer as you I understand how worrying not knowing how an operation might go can be.
The online community is divided into different support groups so I'm going to recommend that you join the bladder cancer group, which is a great place to ask questions, share experiences and get support.
To join, just click on the link I've created and, once you've joined, you can start a new post in the same way as you did here and join in with existing conversations by clicking on 'reply'.
It would be great if you could put something about your diagnosis and proposed treatment into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
"Never regret a day in your life, good days give you happiness, bad days give you experience"
