Husband has secondary cancer of lymph nodes and lesions in brain primary cancer was kidney and i really need someone to talk to about it i have my daughters and familyfor support but thats all my husband was put on dexamethasone 4mg twice daily in december 2024 when they diagnosed the secondary cancers but then reduced to 4mg once a day in january 2025 but i read his new box of it wrong as it said on the box 2 tablets once a day but it was 2mg a tablet and i thought the dosage was 4mg so i have only been giving him 1 tablet a day since the 24th jan 2025 now im really worried and upset i may have caused him harm as at the moment he is in hospital with a swollen hand which they think is due to an infection please help
harm
Hi P23133170 and a very warm welcome to the Macmillan Community but sorry to hear about your husbands diagnosis.
When it comes to confusion surrounding meds and mistakes in taking meds you always call this into his clinical team…… if he has a CNS they are a good people to talk with….. but as he is in hospital I would take all the meds with you on your next visit and talk this through with the hospital staff and they will be able to help you.
A cancer diagnosis like this can be such a challenging and stressful time but getting support from others who are dealing with the ‘exact same' cancer type or support challenges will help you a lot……. I have a completely different type of cancer and treatment journey.
This New to Community area is like our reception desk where we look to direct you to the best part of the Community for you to get support.
The Community is actually divided into dedicated Support Groups (Discussion Rooms) so can I recommend you look to join and post in our dedicated…….
……. support groups.
These groups are safe places to talk to others who may have a similar diagnosis, treatment experience, to ask questions and get support from family members who are navigating the same support journey.
As for the practical and emotional challenges of supporting your husband and indeed yourself you may benefit from joining and posting in our……
Supporting someone with incurable cancer (If this is applicable)
……. support groups where you will connect with a wide range of members navigating the exact same support challenges.
To connect with a group click on the “Bold Italic Links” I have created above …… then once the group page opens click in the [Black - Click to Join - Banner] that appears at the bottom of the page and this will then confirm that you have joined the group.
When you are ready……. you can introduce yourself by putting up your very own post by clicking [+ Create new post] or [+] in the top right of the group page.
It is an emotional time supporting family so you might find this Macmillan information your feelings when someone has cancer helpful as well as this link getting help with your emotions.
The Macmillan Support Line is open between 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00…… this service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.
Talking to people ‘face to face’ can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing.
Do get back to me if you need further help navigating the community ((hugs))
