Sadly at the beginning of October 2024 I was told that I have lung cancer, which has spread to my lymph glands in the middle of my chest, plus the lymph nodes in my neck and I also have 30 plus spreads in my brain, therefore I have stage 4 cancer. I have been told that they cannot operate or cure me, but they will try to prolong my life for as long as they can. As you can imagine it’s been a lot to process and try and come to terms with my diagnosis.
It is all so strange because I look well and I feel reasonably well. Sometimes it’s like I’m talking about someone else and not me! Which plays mind games.
I am currently receiving immunotherapy every three weeks, I had my fourth round of treatment two weeks ago. I had a CT body scan last week and will be having a MRI brain scan tomorrow, than discuss the results with oncology on the 20th Feb.
Speaking of oncology, I really can’t praise the doctors, nurses and all other staff I have come in contact with, they have all been absolutely amazing. I’m not sure what my future holds for me or how long I have, but in saying this immunotherapy has had some really good results, so I am trying to remain positive and I’m still smiling
I read your post and I am sending you kind thoughts and support.
My friend's husband was diagnosed with advanced lung cancer around 5 years ago. He was given months to live. He entered an immunotherapy trial. He didn't think that it would save him. He did it for research and to hopefully help others.
It has been a wonderful success and he is enjoying life to the fullest. I hope this helps a little. Stay strong. x
This is very uplifting so thank you for sharing this story. I only joined this group yesterday and already I can see there is much more hope than I had realised
Hi Kelly. I hope you're doing well & scans all good.
I'm trying to find people with a similar diagnosis to my husband.
T3 N2 M1c IVB lung cancer. He as his first Royal Marsden appointment on Monday 17th March.
He as no symptoms, apart from a slight back ache & shock at diagnosis, as this was picked up purely by chance on a chest x ray relating to a blood test.
He as a 5cm tumour 2 lymph nodes involved a small lesion in brain & 2 small lesions in lower back.
He was told by our local hospital its inoperable, but treatable, hence his referral to the Royal Marsden.
No idea what treament will be offered, although he had a blood test to check for DNA treatment ( sorry I dont understand all the correct names for treatment) some of his biopsy was kept for further studies re treatment, I think.
TBH its all still trying to sink in whats happened & sadly we dont have much support no kuds family etc & my sisters hubby died 2 wks ago, so I cant ask her for support.
I'm really looking for people in similar situations treatment sude effects etc I appreciate everyones different. But deep down he thinks he as just a few months & is struggling ( both struggling TBH) But I'm trying to find hope in what seems a very dark lonely tunnel.
