I have had four operations for ACC, three of them in the lung, and have been told it will come back as it is systemic.
At some point they are not going to be able to treat it. This is causing me a lot of anxiety and I wondered how other people cope with this?
Hi Flamingo275 and a very warm welcome to the Macmillan Community but sorry to hear about your ACC diagnosis.
Navigating a cancer journey can be such a stressful and challenging time but getting support from people who have walked or are walking the ‘exact same' journey can help a lot.
I have been on my incurable journey for over 25 years now with a completely different cancer....... and one way to understand how to deal with it is to talk with others with the same type of cancer........ for me it's all about living in the moment and dealing with tomorrow when it comes.
This New to Community area is like our reception desk where we look to try and direct you to the best part of the Community for you to get support.
The Community is actually divided into dedicated Support Groups (Discussion Rooms) so can I recommend that you look to join and put up your own post in our dedicated ACC Group.
This group is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support. To connect in with the group please click on the link below…….
……. and once the group page opens you will see a [Black - Click to Join - Banner] at the bottom of the page, click in this box and this will then confirm that you have joined the group.
You can then introduce yourself to the group by putting up your very own post by clicking [+ Create new post] or [+] in the top right of the group page.
You can copy and paste the text from this post into your new post.
You may also find our......
Living with incurable cancer - incurable patients only
....... support group helpful.
The Macmillan Support Line is open between 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00…… this service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.
Talking to people ‘face to face’ can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing.
Do get back to me if you need further help navigating the community.
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
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