Hi, I’m new to the site and forums. I’m still waiting for the type of blood cancer I have, but was told by the consultant it is blood cancer. I’ve had thick blood for a few years but my health has recently got worse so doctors did more tests.
My family and friends knew about my thick blood but I would reassure I’d be ok. However since my diagnosis and telling my close family and friends they seem to be denial, they don’t ask if I’m ok, or how I’m dealing with it, they don’t say anything really, they just continue with everyday topics and texts, and continue to tell me there issues. I hope they are in denial because the alternative of them not caring is breaking me. When I first time them it was like I told them I had flu, no one called me to talk or popped in for a cuppa. My husband has been my rock so I’m so grateful I have him but I also need my sister and best friend but they don’t seem to care. The heartbreaking thing is I’m the first one to jump in the car to give them a cuddle or if I can’t get there I’ll call or Uber eats a box of chocolates.
sorry this is so long, it’s the first time I’ve written this worry of mine.
Has anyone been through something like this? And I being selfish for wanting more support, to be a priority the way I priority my friends and family in my life?
thank you for your time reading this xx
Hi CloudChaser10 and welcome to the Macmillan Community but so sorry to hear about your ongoing diagnosis.
I am Mike and I help out across our various blood cancer groups. I have been on my Lymphoma journey for over 25 years….. Sorry to hear about the challenges you are having with your friends and family…… unfortunately how they are reacting often happens….. as many people just don’t know what to do or what to say…… so end up doing nothing.
Navigating the blood cancer journey can be such a stressful and challenging time but getting support from others who are dealing with the ‘exact same' cancer type can help a lot.
This New to Community area is like our reception desk where we look to direct you to the best part of the Community for you to get support.
The Community is actually divided into dedicated Cancer Support Groups (Discussion Rooms) so once you get a clear diagnosis do look through this link Cancer Specific Groups you will find all our dedicated blood cancer support groups listed.
These groups are safe places to talk to others who may have a similar diagnosis, treatment experience, to ask questions and get support from members who are navigating the exact same journey.
The Macmillan Support Line is open between 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00…… this service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.
Do get back to me if you need further help or just want to chat.
