Head and neck cancers

Hi ElizabethD 

Come and join us in the Head and Neck Cancer Group

We have quite a few of us on immunotherapy.

Meanwhile have a look at the profile of one of our member Crofterlad  You can see his profile by clicking on his name. Have a look at THIS THREAD too

1. Thank you so much for replying I'm trying to find my way around this forum I'm not very good on these things so I'm just pressing away hoping I will learn , thank you so much for your help we really appreciate it xx 

I see you’ve joined us at Head and Neck. 
Post your message there too xx

Hi Elizabeth, as mentioned, I also had oropharyngeal cancer that subsequently spread to both lungs,so quite similar to your husband's diagnoses. I started the immunotherpay drug Pembrolizumab around Nov 2021 and ended my 2 year course in Nov 2023. Whilst I was also very scared of the potential side effects, I thankfully had very few, and at the moment am showing 'no evidence of disease' in my 3-monthly scans, and it's been like that for over a year now. So what was a terminal diagnosis has turned into something different (and of course much better!)

The side effects can be horrendous and very serious, as you state, but patients are carefully monitored for these. And recent research has shown that even a reduced stint on Pembro can still lead to longer life expectancy. 

Like many others I kept a blog of my treatment, but I'd be more than happy to answer any questions you might have.

https://ansmackay.wixsite.com/uclgeography/post/immunotherapy-the-revolution-in-cancer-treatment 

Thank you so much for answering this chill cheer him up as its only dokm he's heard and that is something tfarxwas never mentioned to him they said itcwoukd only slow it down so it's wonderful to your success , I Hooe you go from strength to strength thank you so much . X 

Oh dear I thoughtvthatcwas whatvi wasvon I'll try and find where I went wrong, thanking you so much x

Wish I new how to fix all my mistakes on this lol .

ElizabethD said:

Wish I new how to fix all my mistakes on this lol .

Click more under the offending post. Choose edit from the drop down menu and off you go. 
Click reply to finish. 
Sometimes the edit doesn’t appear till you refresh the page. Software glitch 

But I knew what you meant in all your posts so don’t worry