Hello everyone, I came on the group to find a little more information and to try to help me process what I've been told. Yesterday, after my daughter had her appendix out 2 weeks ago, I was told they found NET. They said they are pretty sure that it would have all been removed within the appendix however will let me know after MDT meeting. She has to do a urine collection and blood test and because of her age (13) they may possibly do a body scan. Anybody had an experience like this and can offer any information would be greatly appreciated. They said this is very common however statistics suggest its rare, aswell as the leaflet I was given.
Hi Kaylay and a very warm welcome to the Macmillan Community but sorry to hear about your daughter’s diagnosis.
A cancer diagnosis like this can be such a challenging and stressful time especially with her being so young but getting support from others who are dealing with the ‘exact same' cancer type or support challenges will help you a lot……. I have a completely different type of cancer and treatment journey.
This New to Community area is like our reception desk where we look to direct you to the best part of the Community for you to get support.
The Community is actually divided into dedicated Support Groups (Discussion Rooms) so can I recommend you look to join and post in our…….
……. support group.
This group is a safe place to talk to others who may have a similar diagnosis, treatment experience, to ask questions and get support from family members who are navigating the same support journey.
As for the practical and emotional challenges of supporting your daughter and indeed yourself you may benefit from joining and posting in our……
Parents of children with cancer
……. support groups where you will connect with a wide range of members navigating the exact same support challenges.
To connect with a group click on the “Bold Italic Links” I have created above …… then once the group page opens click in the [Black - Click to Join - Banner] that appears at the bottom of the page and this will then confirm that you have joined the group.
When you are ready……. you can introduce yourself by putting up your very own post by clicking [+ Create new post] or [+] in the top right of the group page.
You can copy and paste the text from this post into your new post.
It is an emotional time supporting family so you might find this Macmillan information your feelings when someone has cancer helpful as well as this link getting help with your emotions.
The Macmillan Support Line is open between 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00…… this service provides cancer information, practical information, emotional support or just a listening ear.
We also have our Ask an Expert section but do allow 3 working days for a reply.
Talking to people ‘face to face’ can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing.
Do get back to me if you need further help navigating the community ((hugs))
