Lymphoma

Hi Pjpumpkin,

Totally on the same page at the moment.

Still feeling that I have somehow entered another dimension.

Awaiting the biopsy results after a colonoscopy. I  had a CAT scan  yesterday. Grateful that I got one relatively quickly.

Feeling moments of dread  and visualising the worst particularly at night. Then finding some courage within me to get up and enjoy a bright morning.  

Hang on in there. Sending love and support. X

It is torture not knowing. Now finding out what lymphoma I might have and still waiting for that is horrendous. It's comforting knowing not going through similar alone and have someone who knows what you going through.

That’s a good way of describing it . Logging into this community chat I felt like an imposter what the hell am I doing on here then remember oh yeah I’m in the C club now .I hope your biopsy results come back soon and are good results. 
oh the dread is palpable one minute your watching something random on tv then with a stab to the stomach you remember. 
I agree with night times I’m finally finding out after 50 years what insomnia is like .

Hope we all get some answers soon scary as it is I’d rather know what I’m facing .

take care of yourself and I’m here to chat any time 

Pam x

Hi everyone…… having been on my journey with 2 rare types of T-Cell NHL for over 25 years and having talked with many many people who have had to navigate the Lymphoma ‘wait’…… unfortunately this is inevitable due to the fact that there are over 60 types and sub-types of Lymphoma but the tunnel has light at the end.

In way of some encouragement……

I was diagnosed age 44 when our daughters were 14 and 18…… I continued to work for 12 years in a demanding teaching job and yes had various treatments over these first 14 years then in late 2013 my second rare aggressive NHL came along taking me to stage 4……. but this was still all very treatable.

But we went on to see our daughters graduate, get married, set up very successful businesses and provide us with 4 beautiful granddaughters….. I turn 70 at the end of this year and as a family we celebrated 9+ years since my last treatment.

I am living a great life and we continue to look forward to what else life has in store for us to enjoy…….. this can be done.

I mentioned that I had read about somebody having a 10 week wait to the nurse doing my biopsy pre assessment and she was really shocked, she said if it's been more than 2 weeks you should start asking questions.

Apparently the secretaries are really good at helping you find out what's going on.

Obviously each individual case is different, and different hospitals will have different wait times, and maybe there is a reason but it seems like it might be time to start asking why it's taking so long?