I'm jules
Just been hit with the big c in neck have had various tests and now waiting for pet-ct to determine where primary is..
Single mum my kids are in bits recently lost grandad to cancer so very raw for them too
Wait times does my nut
Fearing worst
And have symptoms of pain that now seem worse since knowing And alone so no reassurance it be OK
Everyone speak to on eggshells and don't know what to say or do
Hi Jules Jules745 and a very warm welcome to the Macmillan Community but sorry to hear about your ongoing diagnosis.
Navigating a cancer journey can be such a stressful and challenging time but getting support from people who have walked or are walking the ‘exact same' journey can help a lot.
I have been on my journey for over 25 years with 2 types of rare Lymphoma with the first one found after a neck biopsy. The waiting is indeed challenging but the system will get you on the right path.
This New to Community area is like our reception desk where we look to try and direct you to the best part of the Community for you to get support.
The Community is actually divided into dedicated Support Groups (Discussion Rooms)……. but I do see that you ha e already found and joined our dedicated…..
…… support group.
This group is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support. To connect in with the group please click on the link above then once the group page opens you can then introduce yourself to the group by putting up your very own post by clicking [+ Create new post] or [+] in the top right of the group page.
You can copy and paste the text from this post into your new post.
The Macmillan Support Line is open between 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00…… this service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.
Talking to people ‘face to face’ can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing.
Do get back to me if you need further help navigating the community ((hugs))
….. and with you Chris.
I am now 9 years out from my last treatment, turned 69 last month and getting on with life…… there is always hope until hope runs out 
