Help

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My husband was diagnosed with lung cancer on New Years Eve, we are devastated and frightened, we have been in and out of Hospitals the whole of December. My husband has been feeling really unwell to he point he's not eating very well and in a lot of pain, he has absolutely no pain relief, apart from over the counter co-codomol which does absolutely no good, we've no support, we have to attend our first oncology appointment tomorrow morning to find out.....well we don't even know what's next.....please help Sweat

  • Hi lovely, I’m so sorry you’re going through this. I’m in the same position with my partner although his is secondary so a little different to your situation. The treatment they give will make such a difference even after the first round, it feels like it’s doom and gloom at first but the specialists are incredible! My advice would be to always get a second opinion- we went to the royal marsdon and paid privately (around £300) for a consultation and it was invaluable as they put my partner on a new drug which has been incredible for him. It’s also worth looking at diet etc as weird as it may sound some foods can be quite helpful to reduce symptoms. In terms of eating we have a “if you could eat anything right now” game where whatever he craves I will rustle up, healthy or not so healthy to try and keep the weight up. When his appetite is better we eat super healthy but there’s days where we have pizza etc because although processed foods should be avoided, some days you just need a bit of junk! Just try everything and even in the darkest days try your best to stay positive as this also weirdly helps! I’m not sure how to contact you privately but im here for a lending ear to vent because you also need to look after yourself Hearts️sending lots of love 

  • Hi  and a very warm welcome to the Macmillan Community but sorry to hear about your husband’s diagnosis. 

    A cancer diagnosis like this can be such a challenging and stressful time but getting support from others who are dealing with the ‘exact same' cancer type or support challenges will help you a lot……. I have a completely different type of cancer and treatment journey.

    This New to Community area is like our reception desk where we look to direct you to the best part of the Community for you to get support.

    The Community is actually divided into dedicated Support Groups (Discussion Rooms) so can I recommend you look to join and post in our…….

            Lung Cancer

    ……. support group.

    This group is a safe place to talk to others who may have a similar diagnosis, treatment experience, to ask questions and get support from family members who are navigating the same support journey.

    As for the practical and emotional challenges of supporting your husband and indeed yourself you may benefit from joining and posting in our……

         Carers only

    ……. support groups where you will connect with a wide range of members navigating the exact same support challenges.

    To connect with a group click on the “Bold Italic Links” I have created above …… then once the group page opens click in the [Black - Click to Join - Banner] that appears at the bottom of the page and this will then confirm that you have joined the group.

    When you are ready……. you can introduce yourself by putting up your very own post by clicking [+ Create new post] or [+] in the top right of the group page.

    It is an emotional time supporting family so you might find this Macmillan information your feelings when someone has cancer helpful as well as this link getting help with your emotions.

    The Macmillan Support Line is open between 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00…… this service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.

    Talking to people ‘face to face’ can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing.

    Do get back to me if you need further help navigating the community.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge

  • Thank you so much for respondingPray I feel so lost and frightened right now and just want to scream but I can't show any negative emotion I have to stay strong for my husband,  i've never seen him so vulnerable and ill, we have our first oncology appointment tomorrow, I only hope we get some light into what happens now, if there's hope? a plan moving forward? if my husband is going to get through this? apologies just feel helpless right now