Hi everyone, I joined here a month ago but cancer wasn't diagnosed until yesterday.
I have had 2 colonoscopies, the 1st found a Paris lla type v polyp of 12mm, in my heptic flexure, so still small. They weren't able to cut it out at the time but biopsies came back negative. My consultant was still suspicious and he did the next colonoscopy/polypectomy himself. He wasn't able to get it all cut away but tattoo'd it and added a clip for it to show up on CT scan (that I haven't had yet). These biopsies came back as cancerous.
On my colonoscopy report it mentioned me having a family history of HNPCC which I asked the nurse about, I had already looked it up and found out it is Lynch syndrome. I don't have any other info about which type yet as I guess they are still checking it. I have read a few comments on this forum about it but, I am trying to stay positive. Until I get the CT scan I won't know much more only that the nurse mentioned surgery to cut it out. I know it is in a difficult place to have this but will do whatever they suggest.
I thought I'd put a message here in case anyone has had a similar problem, also typing about it feels to be getting all this off my chest a bit. So apologies for throwing so much into the message all in one go
Hi Jilly1 and welcome to the Macmillan Community but so sorry to hear about your ongoing diagnosis.
Navigating the cancer journey can be such a stressful and challenging time but getting support from others who are dealing with the ‘exact same' cancer type can help a lot. I have been on my cancer journey for over 25 years but my diagnosis experience was rather different as I have two rare types of Lymphoma.
This New to Community area is like our reception desk where we look to direct you to the best part of the Community for you to get support.
As you may have seen, the Community is actually divided into dedicated Cancer Support Groups (Discussion Rooms)………… so once you get a clear diagnosis you care to have a look through THIS LIST you will find all our dedicated cancer support groups listed.
These groups are safe places to talk to others who may have a similar diagnosis, treatment experience, to ask questions and get support from members who are navigating the exact same journey.
Have a look through the LIST above and once you find the support group for your cancer type....... click on the link and when the group page opens you will see a [Black - Click to Join - Banner] at the bottom of the page, click in this box and this will then confirm that you have joined the group.
When you are ready……. you can introduce yourself by putting up your very own post by clicking [+ Create new post] or [+] in the top right of the group page.
The Macmillan Support Line is open between 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00…… this service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.
Talking to people ‘face to face’ can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing.
Do get back to me if you need further help navigating the community.
