Newby - awaiting diagnosis suspected lung cancer

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Hi, I have just come across this website whilst searching frantically on google for what to expect next (which I know is not a good plan) so decided instead to give this a go. I have read some other posts which offer me some reassurances.

I have been having various scans/tests since Nov 2024 with result that there is a very small nodule of 8 to 10mm on my left lung. I had a radioactive New Years Eve following a full body PET-CT scan the same day. I am still waiting on results and am feeling quite worried.

Over the past 6 weeks I have experienced every emotion possible including those I have never experienced before and I am dreading the results day! I just wondered whether anybody else is at this early stage or come through this stage and all was fine, or if not fine what happens next?


  • Hi  and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.

    I’m Anne, one of the Community Champions here on the Online Community and I know how scary waiting for the results can be.

    The online community is divided into different support groups so I'm going to recommend that you join the lung cancer group, as you'll then connect with others who have been where you are now, or who are waiting for results, to ask questions, share experiences and get support.

    To join, just click on the link I've created and, once you've joined, you can start a new post in the same way as you did here and join in with existing conversations by clicking on 'reply'.

    If you have any problems navigating the community I'll be pleased to help.

    Community Champion Badge

     "Never regret a day in your life, good days give you happiness, bad days give you experience"

  • Hi Lizzy there are a few of us in the same boat here.  Just got home from a PET scan so now have the inevitable wait.  The best emotion I have come up with to describe this horrid state of affairs is lost. Best wishes.

  • Just had a wedge op for nodules 1cm in size that were 5mm in oct it’s awful the waiting about in limbo not knowing what’s going on im a week after op n will get byopsie results within month mine appear as metastatic which would mean secondary but no primary found I keep praying it’s something other than cancer but either way it’s there regardless an hopefully will b able to get some treatment for whatever it is the wedge op is my first time in hosp n first op but I’m doing good tho sore had it done threw vats 2 wedges top r lung n 2 wedges middle r lung removed my consultant told me anything below a cm is not a mass an that’s a positive  mind u hard to feel positive I hope u get results quickly I understand the emotions I sorted a minister wrote my funeral details o my it’s bn a whirlwind but really worrying is natural as we r all dealing with the unknown 

  • Hi Lizzie, I’m one small step ahead of you. I’ve had my pet scan results and it was good news. I still have a long journey ahead of me. Also diagnosed in November I am now awaiting a treatment plan, surgery, chemo & radiation are all possibilities. I’m struggling with the not knowing but also resigned myself to a very tough year. I’ve opened up to a lot of friends and family for their continued support. Just waiting……The ironic thing is I feel so fit and well and fear I won’t ever get this back because of the type of cancer I have- esophagus. Your results will come through soon and it’s just a small step to the next leg of your journey. I hope it’s a positive!!! 

  • Hi  and can I also welcome you to the online community.

    As I said in my reply to Lizzie262, the online community is divided into different support groups so I'd also recommend that you join the lung cancer group so that you can connect with others who have the same type of cancer to ask questions, share experiences and get support.

    To join, just click on the link I've created and, once you've joined, you can start a new post in the same way as you did here and join in with existing conversations by clicking on 'reply'.

    It would be great if you could put something about your diagnosis and any treatment into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

    Community Champion Badge

     "Never regret a day in your life, good days give you happiness, bad days give you experience"

  • Hi  and welcome to the online community which I hope you'll find is both an informative and supportive place to be.

    As I've mentioned to others in this thread, the online community is divided into different support groups so I'm going to recommend that you join the oesophageal cancer group where you'll connect directly with others who have this type of cancer.

    To join, just click on the link I've created and, once you've joined, you can start a new post in the same way as you did here and join in with existing conversations by clicking on 'reply'.

    It would be great if you could put something about your diagnosis into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

    Community Champion Badge

     "Never regret a day in your life, good days give you happiness, bad days give you experience"

    1. Hi Chris, so sorry to hear your story, it seems a long wait for biopsy results! It’s good that the nodules have been removed though. I hope all goes well with your next steps, take care of yourself. 
  • Good afternoon Lizzie262

    i really glad you found this site, I only found this online platform a few days ago and I feel I have the support and guidance from specialist nurses and other people who are either going through or, been through it or has experience of family friends going through all types of cancer. There is such a wealth of information & support here.

    i was only recently diagnosed on 31/12/24 with Lung Cancer which was a huge shock as feel the GP did nothing to refer me over for MRI scan and nie I’m hit with Stage 4 Lung cancer, So def not a happy bunny.

    im so pleased you found this Website it is very supportive and most helpful. Welcome BlushBlush

  • Hi Coxie, thank you for responding. I have had some results from PET scan this morning, they are 79% edging towards this being cancerous but I will be going for surgery to have the nodules removed and tested further.
    I guess I feel similar to you. I was told that they would need to remove a section of my lung and this could leave me with issues connected to breathlessness in the long term. Like you I am fit and well so dreading the possibility of not being able to do some things that I enjoy now. Also the holiday thing this year seems to be out of the window but at least I am now ‘ in the system’ and receiving treatment of some sort.

    I wish you well in your journey and it’s good that you have support of family and friends. Take care of yourself. 

  • Thank you sisterchic11. I have received news this morning that I will need surgery within the month to remove the nodule and a portion of lung for further testing. I am finding the site very helpful.

    I am so sorry to hear of your situation and to be given the news on NYE too, how awful for you! Reading some threads on the lung cancer forum I can see that there are lots of positive outcomes for stage 4 (I don’t know my stage yet)? I wish you the very best and you take care of yourself x