Hi all :)
Just looking for other people's thoughts and advice.
I had mastectomy, with reconstruction and implant September last year. Then had lymph nodes removed. 2 out of 9 had cancer. CT scan showed not spread. Joined optima study which then recommended hormone therapy only.
2 things. I think the tamoxifen is affecting my moods, I feel realy low which is not like me. Hard to know if it's that or the situation I'm in ! My hands are really dry and my palms red, is that a normal side effect ?
I have an appointment this week re radiotherapy but I didn't think I'd be having it. All cancer taken out with mastectomy. Very low grade and slow growing. Would radiotherapy cause more damage, especially since I've had lymph node removal and an implant. Can I refuse radiotherapy? Will I still be part of optima study if I do ?
Also they want me to have zoladex injections every 3 months to switch off my ovaries. Why ?
Any advice would be appreciated x
Thanks
Hi Freshair and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
I’m Anne, one of the Community Champions here on the Online Community and I was diagnosed with breast cancer in April 2022 but wasn't put on the Optima study.
The online community is divided into different support groups so I'm going to recommend that you join the breast cancer group, which is a great place to ask your questions, share experiences and get support.
To join, just click on the link I've created and, once you've joined, you can start a new post in the same way as you did here and join in with existing conversations by clicking on 'reply'.
It would be great if you could put something about your diagnosis and treatment to date into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
"Never regret a day in your life, good days give you happiness, bad days give you experience"
